Born

Different

Inside the Lives of People with Albinism in Africa

About the project

A project by Czech anthropologist Kateřina Mildnerová and Mozambican photojournalist Antonio Cossa which brings direct testimonies from inside the lives of people with albinism (PWA) in Africa.

 

AWARENESS

  • we raise public awareness of human rights violations against PWA in Africa
  • we organise photographic exhibitions, guided tours, lectures with discussions and workshops for the professional and general public
  • we prepare book and documentary film
  • we communicate with Media, politicians, NGOs and international organisations

 

FIELDWORK

  • we document lived everyday reality of people with albinism and challenges they face
  • we bring authentic testimonies of survivors of ritual attacks or victims of abduction, mutilation and sexual abuse
  • we combine ethnography, photography and film
  • we bring stories and evidences from Zambia and Benin

 

 HELP

  • we provide assistance and protection to people with albinism in Zambia
  • we focus on education, healthcare, legal protection and material support.
  • we provide material aid to vulnerable groups (mothers, children and survivors) directly on the ground where they live
  • we organize charity fundraisers

Since 2015, Zambia has faced an increasing number of abductions, mutilations and ritual killings of people with albinism, in most cases defenceless children. Their body parts are used for making magical objects that are supposed to provide their owners with wealth, power or prestige. While these murders are most often committed by family members of the victims while still in Zambia, body parts are smuggled through organised crime networks into neighbouring countries – Malawi, Tanzania and Mozambique.

The largest number of ritual killings of albinos occur in the Eastern Province, the poorest region of Zambia. The victims of the attacks, if they manage to escape, continue to live in permanent fear for their lives, as the perpetrators are not prosecuted in the vast majority of cases. After an attack, children are placed in state orphanages, where they receive temporary protection, they are removed from their natural family environment and have to cut off contact with their parents and siblings.

In addition to the threat to their safety, people with albinism face enormous health risks due to the lack of medication and protective equipment. Skin and eye cancer is the most common cause of their premature deaths. People with albinism in Zambia live to an average age of only 40 years, 22 years less than the national average.

Most affected families live at or below the extreme poverty line. They cannot afford to provide education for their children because safety and health care must understandably take priority. Families lack the means to afford school supplies, school uniforms or even just the dioptric glasses necessary for reading and writing at school. Yet education is the ticket to a better future, without the daily fear for one’s survival. In Zambia, there is a belief that a child with albinism is the result of infidelity and the source of a family curse, which unfortunately often leads to the mother and child being abandoned by the father and the wider family. A single mother‘s status is inevitably linked to a life of poverty and it is very difficult for her to break this vicious cycle.